From now on, whenever I am having a bad day, I will pray for the Jordans. Their blog begins:
8 yo Hannah has an unknown metabolic disease with multi-system organ issues. She has doctors all over the country. Her brother, Braxton has autism and numerous system issues as well. I have been recently diagnosed with MS. We need all the prayers we can get!
Days in which all members of this family feel well are rare. Each day is a struggle to achieve some kind of normalcy that will allow both parents to work so they can keep insurance and have the money to take the children to specialists in Texas, New York, and Illinois.
They were recently in Chicago for doctors to evaluate their daughter and, hopefully, get a diagnosis. The plan was to return home on Dec. 24. As they were packing to leave, they got a call from the doctor that instructed them to unpack. Hanna needed another test that could not wait. They got two diagnoses. Both rare and scary. And a third possible diagnosis that is equally as scary. The doctors think that the mother and both children may have this third diagnosis, but they didn’t have time to confirm it before the family had to return home so the parents could go back to work.
The Jordans drove through a blizzard and arrived at their home in Tulsa on Dec. 27. Without time to rest completely from their travel, the parents went to work the next morning. Dec. 29, while the parents were at work and the children were with relatives, their home burned down. They were underinsured.
I know what the mother goes through with her Multiple Sclerosis because I endure similar symptoms. What I cannot imagine—fear to imagine—is the horror and heartbreak of having all my children suffer such terrible illnesses. As impossible as it is to cope with the children’s illnesses, this “coping” aggravates the mother’s MS. And the father must watch his entire family suffer—unable to change their illnesses. He is a good man with a true love for his family. But he carries a heavy burden financially and emotionally.
Now their home is in ashes. It is unimaginable, unthinkable.
It will take time to replace the critical medical equipment the children depend on. They have nothing but the clothes on their backs. This last devastation will wear heavily on the health and finances of the whole family.
Yet, they face this, too, with their characteristic courage and faith.
So the next time I’m having a really hard day coping with my health, I will think of the Jordans and know that others suffer more than I do. I will pray for them health, blessings, and joy—especially joy.